Life is becoming totally unbearable at the moment, a simple trip to feed the ducks was so stressful I’m honestly not sure why we bothered. Logan is spending 80% if the time in meltdown, tense, frustrated even a violent state.
I think this maybe due to uncertainty at school over his class next year. Logan has spent the past 2 years in a ‘pod’ that’s school speak for classroom in a portacabin / temporary classroom outside of the main school buildings.
This year it’s expected he’ll be in the main school building with all the anxiety that brings for him, the ‘pod’ classrooms have there own toilets but in the main school building its shared with the rest of the school is just one example of change that’s adding to his stress levels.
The school had promised a transition programme, for Logan but this now seems non existent as we’ve been told the teachers themselves still don’t know where they’ll be next year, in fact the school is interviewing for staff. With only 7 school days left of the term is looking like the transition idea is scrapped despite how needed it is to children like Logan.
Where do you start, is Logan just hungry? always? It seems that way.
Logan steals food constantly I’m not just talking about the odd biscuit here and there, I’m talking massively strangely eats full packs of biscuits, or full box of ice lollies and if we’ve nothing in that can be taken he will even eat frozen food including burgers, fish fingers etc. This is a 24/7 issue it doesn’t matter what the time of day, he’ll get up in the middle of the night and eat whatever he can find.
At first I thought he’d grow out of it but it’s just getting worst and worst, I’ve even considered putting a padlock on the fridge but afraid the social services might frown upon my decision so haven’t but things can’t continue the way they are.
Over Easter he ate 2 of his sisters Easter Eggs, they had even been hidden away obviously not well enough but I’m now starting to think he just can’t help himself. I keep finding hidden half eaten food items under the sofa along with all the litter from the food he’s helped himself to.
Its really heard to actually put this problem in to words but were getting no help or even advice from anyone, even suggestions on ways to deal with it.. In fact support for us and Logan is next to non-existent.
Time to bash some heads together again I think.. surly support for families like ours should be more forth coming then currently is the case.
Having had a really busy couple of weeks were looking forward to a quiet Easter, although we’ve plans to move house and change kids schools and all sorts so keep an eye out trouble may be just around the corner.
Read More →
Logan had an ordinary EEG. around a year ago (before even being diagnosed with the chromosome 16p12.2 micro deletion). This ordinary EEG failed to find a cause of these absences and following on from that and Logan’s history of unexplained absences, the specialist have decided to try a Melatonin EEG.
When the letter fist came we weren’t aware what Melatonin was and to be honest wasn’t even expecting the appointment, the leaflet included wasn’t very informative to be honest. It basically states that Melatonin is a naturally occurring substance produced by the pineal gland in the brain and is produced to prepare the brain for a nights sleep. Read More →
As anyone reading will be aware after yesterdays bus incident, we went to see Logan’s paediatrician. During the appointment I was very disappointed to find out that Logan’s School/Educational Psychologist have failed to forward any of the information they have been asked for, in fact they’ve returned no reports what so ever. Now this leaves us feeling “if they can not communicate with the professionals providing Logan’s care what hope do we really have”.
So far this school is really failing in my opinion, and I’m rapidly losing confidence in both the school and Salford education. Read More →
Well where do I start,
Today Logan had an appointment with the paediatrician, and unusually we decided to go as the whole family as the kids are off school for half term.. Read More →
Have been nearly 12 months since Logan’s diagnoses, we’re having to fight for everything. Logan has a history of language delay and learning disability, although his actual language has improved over time he still struggles with actual understanding at a level equal to his peers. Despite this his school seem very slow at understanding or even accepting there is even a problem. There is no sign of an education, health and care (EHC) plan, in fact there’s no sign of anything of any use above what other children in the school are getting.
I have now decided enough is enough and things are going to start moving in this regard!!
Well 2014 bought us the diagnosis of Logan 16p.2 it’s been a tough year with everything going on with him but hopefully 2015 will be a better year and we can get him the help that he needs and stop being pushed from pillow to post
Although Logan doesn’t have a clinical diagnoses of Autism spectrum disorder, we have joined a local support group called ASSP and have been attending for several months now, gaining some really useful advice and information from the group and various guest speakers. Read More →
Got up really early this morning to find Logan already up, this isn’t all that unusual to be honest, something about this 16p12.2 deletion has made Logan require very little sleep. Anyway I decided to take Logan out on a trip to Bury Market, this is around an hour journey taking two buses in each direction but what I planned to buy hopefully would be worth it.
Logan was amazingly good on the way there and was treated to £1 which he spent on 3 bags of chocolate coins, one each for him and his brother and sister.
Strangely he didn’t seem very excited buy the purchase of the Laser Lights that I’d got for the Christmas party later.